Action Duchenne

Action Duchenne prioritises the funding of innovative research into a cure and effective medicines for Duchenne Muscular Dystrophy. The charity, which is led by families and individuals living with Duchenne families, also promotes awareness of the condition. The charity campaigns to improve care services, and provide access to a range of both educational, support and development programmes for people living with Duchenne at every stage of the condition. 
This is achieved by working in partnership with families, government agencies, NHS and care organisations, other charities, umbrella organisations like Duchenne Alliance and UPPMD, academic, scientific and research groups, and biotech companies worldwide.