Children’s Specialist Palliative Care Team (PATCH team)
The Children and Young People’s Palliative Care Team – (PATCH Team) is an element of the Children’s Community Services which currently provides specialist respite home based nursing care to children and young people who have been assessed as having either life threatening / life limiting, complex and/or palliative and end of life care needs in accordance with their choices, expressed wishes and level of need.
Short term respite care is highly valued by parents of children with prolonged illness and this need is paramount for children who require nursing/symptom management during respite care provision. The PATCH Team provides a service in which children and families are offered periods of care following an assessment of need and which will, in many ways, assist parents and families to utilise an additional coping strategy. Many parents report that their greatest need is planned respite in the child’s home. The aim of the team is to, above all, offer support and a practical service to families who require a specified level of care.
Priority is always given to those children who have imminent end of life care needs, those whose health status is deteriorating or who have high dependency complex care needs.
The availability and flexibility of this team in the provision of ‘end of life’ care facilitates patient and family choice i.e. the choice for children to die within their own homes with additional respite support instead of in their local hospital or a children’s hospice many miles from their own home.
The team of health care support workers (HCSWs) are competent in caring for children who have gastrostomies, are oxygen dependent, require suctioning, tracheostomy care, stoma care, intravenous infusion of Total Parenteral Nutrition (TPN), Hickman lines and home ventilation. The team routinely administers medication to children in their care. Individualised training relating to each child is provided by the Specialist Nurse Trainers and /or Children’s Palliative Care Coordinator.
A Play Specialist/Youth Worker works alongside the HCSW with a particular focus on play and leisure activities and will work on a one to one basis with an ill child who is not well enough to attend school . She also works very closely with the Family Support Specialists in delivering pre and post bereavement support to families.
The Play Specialist/Youth Worker utilises skills and expertise in order to perform a wide and exhaustive range of activities requiring specialist play and social skills. This includes providing distraction, preparation work, social and leisure activities and will include emotional, psychological support through play and social intervention.
The Children’s Palliative Care Coordinator provides leadership and management to the team and is the lead for children and young people’s end of life care for the community children’s services. This post holder is an expert resource on symptom control, participates in the CCN 24 hour on-call service provision and develops resources and guidance to enhance end of life care provision throughout the Community Children’s Services
Who to contact
- Contact Name
- Jo London
- Contact Position
- Team Leader
- 01476 464786
Where to go
PATCH Team- C/O Kingfisher Unit, Grantham & District Hospital
- South Kesteven
- NG31 8DG
Service is delivered in the child’s own home, school settings and other community settings.
The team provides a countywide service the throughout Lincolnshire.
Time / Date Details
- Session Information
The service is provided outside of regular working hours e.g evenings, weekends and nights
Out of hours and on call service available to support children at End of Life Care
A flexible service to meet the child and family’s needs
- Opening Times
Opening Times Day Opening Time Closing Time Monday 09:00 17:00 Tuesday 09:00 17:00 Wednesday 09:00 17:00 Thursday 09:00 17:00 Friday 09:00 17:00
- Referral required
- Professional Referral
- Referral Details
On receipt of a referral that meets the referral criteria, the Team Coordinator will arrange to visit the family to make a full holistic assessment of the child’s needs. A discussion of the family’s needs and wishes will take place as will existing or other appropriate sources of care / respite provision. This assessment will further clarify the child’s eligibility for the service.
- Any child with malignant disease relapse or recurrence that is likely to result in the child’s imminent death
- Any newborn baby diagnosed with a condition that is likely to result in the baby’s imminent death.
- Children who are recognized as having palliative care and complex nursing/medical care needs and require Short break care and/or end of life care. Children with complex needs routinely require day to day care which is dependent on health care technology such as dialysis , full invasive ventilation or TPN, to sustain their health at home. A child with complex care needs will have needs which are likely to be many and relating to several aspects of care e.g. feeding, breathing, seizures.
- Any infant, child or young person newly diagnosed with a condition that is likely to result in the child’s imminent death.
- Any family taking their deceased infant, child or young person home to care for prior to his/her funeral.
- Any infant, child or young person with an expected need for Personal Resuscitation Planning (PRP)
Any child not meeting the service criteria is signposted to either children’s services for respite provision or to Continuing Health Care.
Palliative Care Coordinator 01476 464786 (with answer phone)
- Specific age range
- 0 - 19 Years
All relevant clinical training.
- Safeguarding training,
- Equality and Diversity,
- Dignity in care,
- Mental capacity,
- Palliative Care training and Symptom Control training.
Experience in all complex physical, learning and neuro-disability, complex medical and nursing needs, End of Life Care.
This service is listed for your information. Its inclusion on the Family Services Directory does not imply endorsement, approval or recommendation by Lincolnshire County Council. For more information, go to Terms & Conditions