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Action Duchenne

Action Duchenne prioritises the funding of innovative research into a cure and effective medicines for Duchenne Muscular Dystrophy. The charity, which is led by families and individuals living with Duchenne families, also promotes awareness of the condition. The charity campaigns to improve care services, and provide…

Telephone
020 72508240

Email: info@actionduchenne.org

Website: Action Duchenne

This record provides a service for Children and Young people with SEND

Afasic, Voice for Life

Afasic supports parents and represents children and young people with speech, language and communication needs (SLCN). You can ring our parents helpline during our opening hours. 

Telephone
Parent helpline: 0300 666 9410

Email: info@afasic.org.uk

Website: Afasic, Voice for life

This record provides a service for Children and Young people with SEND

Aid for Children with Tracheostomies

Aid For Children with Tracheostomies (ACT) offers support and advice to families and professionals involved in the care of children with a tracheostomy.

Telephone
01827 65778

This record provides a service for Children and Young people with SEND

Alex TLC

Alex TLC  provide advice and information about Adrenoleukodystrophy in all its forms readily available to anyone, medical or personal, and to offer support to affected families.

Telephone
020 7701 4388

Email: info@alextlc.org

Website: https://www.alextlc.org/

This record provides a service for Children and Young people with SEND

Ataxia UK

Ataxia UK works in two main ways: we fund research into finding treatments and a cure for ataxia, and we support people through our range of services. This section is divided into two main sections. Services we offer include: Helpline and Advocacy Service. A range…

Telephone
0845 644 0606

Email: helpline@ataxia.org.uk

Website: Ataxia UK website

This record provides a service for Children and Young people with SEND

Attention Deficit Disorder Information and Support Service (ADDISS)

The National Attention Deficit Disorder Information and Support Service(ADDISS) provides information, support and training for parents, professionals and persons who have Attention Deficit Hyperactivity Disorder (ADHD). Telephone support, information packs, books and videos are available, as well as conferences and training. The service is accessed…

Telephone
020 8952 2800

Email: info@addiss.co.uk

Website: ADDISS

This record provides a service for Children and Young people with SEND

Autism Education Trust

The Autism Education Trust (AET) believes that all children and young people with autism should receive an education which enables them to reach their individual potential to engage in society as active citizens (and that individuals, families and professionals are informed, supported and equipped to…

Telephone
0207 903 3650

Email: info@autismeducationtrust.org.uk

Website: Autism Education Trust

This record provides a service for Children and Young people with SEND

Autism Independent UK

Autism Independent UK was formerly known as SFTAH and exists to bring an increased awareness of autism to the notice of all and to improve the quality of life for people with autism. Information training seminars and work-shops are held, a library exists plus a…

Telephone
01536 523274

Email: autism@autismuk.com

This record provides a service for Children and Young people with SEND

Autismlinks

www.autismlinks.co.uk is a FREE website dedicated to making those helpful and sometimes vital links. It covers who to talk to, where to go and contains lots of helpful information all in one place.  

Telephone
01302 866906

Email: info@autismlinks.co.uk

Website: Autism Links

This record provides a service for Children and Young people with SEND

Batten Disease Family Association

The Batten Disease Family Association (BDFA) is a national charity which aims to support families, raise awareness and facilitate research into the group of devastating neurodegenerative diseases commonly known as Batten Disease.

Telephone
0800 046 9832

Email: support@bdfa-uk.org.uk

Website: Batten Disease Family association

This record provides a service for Children and Young people with SEND

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