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Meningitis Now

The Meningitis Now is dedicated to supporting people who are living with the impact of the meningitis. Through our range of free professional services and our community team, we can offer support throughout the UK. We offer emotional support and advice, including a free 24-hour…

Telephone
0808 80 10 388

Email: helpline@meningitisnow.org

Website: Meningitis now

This record provides a service for Children and Young people with SEND

MIND (National Association for Mental Health)

Every year, one in four of us will experience a mental health problem. But hundreds of thousands of people are still struggling. We believe no-one should have to face a mental health problem alone. We’ll listen, give you support and advice, and fight your corner.…

Telephone
0300 123 3393 - MIND info advice line (Mon - Fri 9am - 6pm)
0300 466 6463 - MIND legal advice line (Mon - Fri 9am - 6pm)

Email: info@mind.org.uk

Website: MIND website

This record provides a service for Children and Young people with SEND

MLD Support Association UK

MLD Support Association UK was set up to bring hope to families in the fight to eradicate Metachromatic Leukodystrophy (MLD). Our main aim is to support families and sufferers of MLD by way of shared information from people in similar circumstances who have already experienced…

Email: admin@mldsupportuk.org.uk

Website: MLD Support Association UK

This record provides a service for Children and Young people with SEND

MPS Society

The Society for Mucopolysaccharide Diseases (the MPS Society) is a registered charity, which supports children and adults suffering from MPS and related Lysosomal Storage Diseases, throughout the UK, their families, carers and professionals.

Telephone
03453 899901

Email: mps@mpssociety.org.uk

Website: MPS Society

This record provides a service for Children and Young people with SEND

Muscular Dystrophy Campaign

Muscular dystrophy and related neuromuscular conditions are regarded as rare and, in many cases, even ultra-rare conditions. There are currently no efficient treatments or cures available for most of these conditions. Research, however, advances fast and a number of clinical trials to test the clinical…

Telephone
0800 652 6352 (Mon - Fri 8.30am - 6pm)

Email: info@muscular-dystrophy.org

Website: Muscular Dystrophy Campaign website

This record provides a service for Children and Young people with SEND

The National Autistic Society

Around 700,000 people in the UK have autism. Together with their families they make up around 2.8 million people whose lives are touched by autism every single day. Autism is a lifelong developmental disability that affects how a person communicates with, and relates to, other…

Telephone
0808 800 4104 - Austim helpline (Mon - Fri 10am - 4pm)
0808 800 4102 - Education Rights Service (leave a message and we will call you back)
0808 800 4106 - Parent-to-Parent Service (leave a message and we will call you back)
020 7833 2299 - switchboard

Email: nas@nas.org.uk

Website: National Autistic Society website

This record provides a service for Children and Young people with SEND

National Federation Of The Blind

With representatives on numerous committees of other organisations of and for blind and partially sighted people, we campaign to improve the overall welfare and quality of daily life for all blind, partially sighted, deaf-blind people and those whose sight impairment is part of multi disability,…

Telephone
01924 291313

Email: admin@nfbuk.org

Website: NFBUK website

This record provides a service for Children and Young people with SEND

National Information Centre for Metabolic Diseases (CLIMB)

We are a national organisation working on behalf of children, young people, adults and families affected by metabolic disease. The National Information Centre for Metabolic Diseases is part of the Climb Group. Climb (Children Living with Inherited Metabolic Diseases) is the United Kingdom's foremost provider…

Telephone
08006 523181

Email: enquiries@climb.org.uk

Website: CLIMB

This record provides a service for Children and Young people with SEND

National Society for Epilepsy

More than half a million people in the UK have epilepsy, a common serious neurological condition where there is a tendency to have seizures that start in the brain. Find out more about epilepsy and seizures including causes, triggers and risks.

Telephone
01494 601 400 - Helpline
01494 601 300 - Switchboard

Website: Epilepsy Society website

This record provides a service for Children and Young people with SEND

Niemann-Pick Disease Group (UK)

The aim of the Niemann-Pick Disease Group (UK) is to make a positive difference to families affected by the disease through the provision of Care, Information and Research. Care takes the form of providing a central office with a 24 hour telephone help line and…

Telephone
01914 150693

Email: niemann-pick@zetnet.co.uk

Website: Niemann-Pick Disease Group (UK)

This record provides a service for Children and Young people with SEND

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