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Contact a Family

Contact a Family helpline For information or advice on any aspect of caring for a disabled child, including full benefits checks, contact our national freephone helpline Telephone: 0808 808 3555 Opening hours:  Monday to Friday, 9.30am to 5pm, Email: helpline@cafamily.org.uk Our team of  trained advisers includes…

Telephone
0808 808 3555

Email: helpline@cafamily.org.uk

Website: Contact a Family

This record provides a service for Children and Young people with SEND

Cri du Chat Syndrome Support Group

The support group is made up of families and relatives of those with CdCS, as well as research members who have expressed an interest in this condition. However, the group is open to anyone with an interest or need, whether in the UK or abroad.…

Telephone
0845 0942725

Email: office@criduchat.org.uk

Website: Cri du Chat

This record provides a service for Children and Young people with SEND

Cystic Fibrosis Trust

Cystic fibrosis is a life-shortening inherited disease, affecting over 10,000 people in the UK. You can't catch or develop cystic fibrosis, it's something you're born with and most cases in the UK are now diagnosed soon after birth. Cystic fibrosis is an inherited disease caused…

Telephone
020 3795 1555

Email: enquiries@cysticfibrosis.org.uk

Website: Cystic Fibrosis Trust website

This record provides a service for Children and Young people with SEND

Down's heart Group

A charity offering support and information relating to heart conditions associated with Down's Syndrome.

Telephone
0300 102 1644

Email: info@dhg.org.uk

Website: Down's Heart Group

This record provides a service for Children and Young people with SEND

Down's Syndrome Association

Our aim: To create the conditions that all people with Down’s syndrome need to live full and rewarding lives. Our mission: Helping people with Down’s syndrome to live full and rewarding lives. Who we are: We are the only organisation in this country focusing solely…

Telephone
0333 1212 300

Email: info@downs-syndrome.org.uk

Website: Down's Syndrome Association Website

This record provides a service for Children and Young people with SEND

Duchenne Family Support Group

The Duchenne Family Support Group (DFSG) is a small national charity run by families affected by Duchenne muscular dystrophy, to support families affected. It provides a positive support network of parents, their families and professionals. The DFSG helps bring families together for mutual support and…

Telephone
0800 121 4518

Email: info@dfsg.org.uk

Website: Duchenne Family Support Group

This record provides a service for Children and Young people with SEND

Dyslexia Action

Dyslexia Action is a leading provider of specialist teacher training/practitioner training and specialist teacher/practitioner assessor training. We offer a range of pathways to achieve specialist teacher/practitioner assessor status. Our dyslexia training courses are designed to strengthen the expertise and confidence of teachers, SENCos, practitioners, teaching assistants, learning support staff, language…

Telephone
0300 303 8357

Email: info@dyslexiaaction.org.uk

Website: Dyslexia Action

This record provides a service for Children and Young people with SEND

Dyspraxia Foundation

The Foundation acts as a resource centre for those wishing to learn more about dyspraxia. The objects of the Dyspraxia Foundation are: To support individuals and families affected by dyspraxia To promote better diagnostic and treatment facilities for those who have dyspraxia To help professionals…

Telephone
01462 454986 - Helpline
Fax: 01462 455052

Email: dyspraxia@dyspraxiafoundation.org.uk

Website: Dyspraxia Foundation website

This record provides a service for Children and Young people with SEND

East Lindsey Heart Support Group

Every first Wednesday at 19:30
The Heart Support Group in East Lindsey, Lincolnshire exists to support anyone with heart problems and their carers. The Group was formed in 2003. Group meetings are arranged for each month and have featured a number of eloquent speakers on a wide variety of subjects.…

Website: East Lindsey Heart Support Group

Epilepsy Action

Epilepsy Action is the UK’s leading epilepsy organisation and exists to improve the lives of everyone affected by the condition. Epilepsy can affect anyone at any age and from any walk of life, and globally over 50 million people have the condition. Epilepsy Action is…

Telephone
0808 800 5050

Email: epilepsy@epilepsy.org.uk

Website: Epilepsy Action website

This record provides a service for Children and Young people with SEND

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