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    Action Duchenne

    Action Duchenne prioritises the funding of innovative research into a cure and effective medicines for Duchenne Muscular Dystrophy. The charity, which is led by families and individuals living with Duchenne families, also promotes awareness of the condition. The charity campaigns to improve care services, and provide…

    Telephone
    020 72508240

    Email: info@actionduchenne.org

    Website: Action Duchenne

    This record provides a service for Children and Young people with SEND

    Afasic, Voice for Life

    Afasic supports parents and represents children and young people with speech, language and communication needs (SLCN). You can ring our parents helpline during our opening hours. 

    Telephone
    Parent helpline: 0300 666 9410

    Email: info@afasic.org.uk

    Website: Afasic, Voice for life

    This record provides a service for Children and Young people with SEND

    Aid for Children with Tracheostomies

    Aid For Children with Tracheostomies (ACT) offers support and advice to families and professionals involved in the care of children with a tracheostomy.

    Telephone
    01827 65778

    This record provides a service for Children and Young people with SEND

    Alex TLC

    Alex TLC  provide advice and information about Adrenoleukodystrophy in all its forms readily available to anyone, medical or personal, and to offer support to affected families.

    Telephone
    020 7701 4388

    Email: info@alextlc.org

    Website: https://www.alextlc.org/

    This record provides a service for Children and Young people with SEND

    Ataxia UK

    Ataxia UK works in two main ways: we fund research into finding treatments and a cure for ataxia, and we support people through our range of services. This section is divided into two main sections. Services we offer include: Helpline and Advocacy Service. A range…

    Telephone
    0845 644 0606

    Email: helpline@ataxia.org.uk

    Website: Ataxia UK website

    This record provides a service for Children and Young people with SEND

    Attention Deficit Disorder Information and Support Service (ADDISS)

    The National Attention Deficit Disorder Information and Support Service(ADDISS) provides information, support and training for parents, professionals and persons who have Attention Deficit Hyperactivity Disorder (ADHD). Telephone support, information packs, books and videos are available, as well as conferences and training. The service is accessed…

    Telephone
    020 8952 2800

    Email: info@addiss.co.uk

    Website: ADDISS

    This record provides a service for Children and Young people with SEND

    Autism Education Trust

    The Autism Education Trust (AET) believes that all children and young people with autism should receive an education which enables them to reach their individual potential to engage in society as active citizens (and that individuals, families and professionals are informed, supported and equipped to…

    Telephone
    0207 903 3650

    Email: info@autismeducationtrust.org.uk

    Website: Autism Education Trust

    This record provides a service for Children and Young people with SEND

    Autism Independent UK

    Autism Independent UK was formerly known as SFTAH and exists to bring an increased awareness of autism to the notice of all and to improve the quality of life for people with autism. Information training seminars and work-shops are held, a library exists plus a…

    Telephone
    01536 523274

    Email: autism@autismuk.com

    This record provides a service for Children and Young people with SEND

    Autismlinks

    www.autismlinks.co.uk is a FREE website dedicated to making those helpful and sometimes vital links. It covers who to talk to, where to go and contains lots of helpful information all in one place.  

    Telephone
    N/A

    Email: info@autismlinks.co.uk

    Website: Autism Links

    This record provides a service for Children and Young people with SEND

    Batten Disease Family Association

    The Batten Disease Family Association (BDFA) is a national charity which aims to support families, raise awareness and facilitate research into the group of devastating neurodegenerative diseases commonly known as Batten Disease.

    Telephone
    0800 046 9832

    Email: support@bdfa-uk.org.uk

    Website: Batten Disease Family association

    This record provides a service for Children and Young people with SEND

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